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Requested post: Why I don’t trust the CDC

As everyone who reads this blog knows, I have Lyme disease, have had it since I was 14. Because of wrong information about prevention and identification of both seed ticks (youngest tick form most likely to transmit) and the MYRIAD of rashes (not just target rash) that can occur with transmission, my mother and I [...]

Neurologist appointment went well in an unexpected way.

I can’t type very fast, so I’m going to say what I can as briefly as I can.

I finally went to a neurologist, today. I got a recommendation from my LLMD, had an appointment, blahblahblah, filled out a ton of paperwork, etc., and finally went back to see him.

The first thing he does [...]

Impressive.

I’ve only been on antibiotics for a week and a half, and I already have a sinus infection.

Last time, I think it took quite a bit longer for that sort of thing to occur.

In addition, my side effect symptoms have been as follows (differing severity each day):

dizziness joint pain cough headache weakness [...]

Sorry, about to get a bit tetchy.

I think I’m allowed to get a bit angry at the state of things, right now.

I felt like shit in May, but was pronounced cured via a broken test that my doctor KNEW was broken, but because of lobbying (hooray, money makes the world go round), he has to follow that broken test. THANKS, [...]

I really want to express myself…

…but I’m never sure how angry I can get at my situation before people start acting like I shouldn’t be angry.

And I’m really angry about my situation, for a number of reasons, some of which I haven’t shared, because they’re not exactly tied into anything that’s relevant to anyone else.

But again – how [...]

Yesterday was pretty neat!

My dad picked me up, and we went to get sushi (well, I got sushi…he got some combination plate with teriaki chicken, seafood, veggies, and rice). I actually got him to try a piece of my tempura shrimp roll. He pronounced it “okay.”

After that, we had freakin’ 3.5 hours to kill before the movie, [...]

Not the weirdest place I’ve ever spent a birthday…

…but not exactly pleasant.

It turns out the combination of antibiotics I’m on have the unfortunate interaction to cause ALL OF THE GASTROINTESTINAL DISTRESS.

ALL OF IT.

I’m nauseated, my gallbladder hurts, my stomach feels icky, my intestines hurts, and I’m starting to amass items in the bathroom that will amuse me between bouts of [...]

My Lyme has relapsed.

I’m starting back on antibiotic treatment ASAP. It’s going to be more aggressive, with variants that also address Bartonella (which we can’t rule out – it was a possibility in May, as well) added to the mix. Instead of 2 at a time, I’ll now be on 3.

The mastoid-cell infection was the harbinger. It [...]

Woo! Infections! Yay!

So no one called me back about my CT results, and I left a message for my doctor’s office, yesterday, to find out what the heck is going on. I got a call back, today, in which it was assumed I’d already gotten my results, so the nurse was kind of curt with me at [...]

Biopsy’s back! No cancer!

I figured it was better to just get to the point in the title.

The two growths were benign granulomas. There wasn’t even endometrium in there, thank god.

They’re not even suture granulomas, because the sutures have long since dissolved. They were just my body being ornery.

 

I asked my doc if it was [...]