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More as this develops, but I thought I’d let y’all know.

I took some time off of reading blogs because I don’t have time with everything else I’ve been doing.  I’ve tried to slow down on the posting, but I’ve found that I can’t let go of this outlet, even if I never post about anything too in-depth or interesting any more (or at least, not as often).

This has alleviated my stress somewhat, but there are still things going on that are just freakin’ my shit out.  I’m busy, I’m stressed, and I’m still not sleeping well.  This has just not been a good time for me.

Well, long story short, I went to the doctor about it today, because physically I’ve been feeling like I’ve been hit by a car.  I know that it’s related to me not getting enough sleep while also being stressed, but I decided to be safe and just get checked out.  So I went in, and my doctor referred me to a rheumatologist to get checked out for fibromyalgia.

I know what a lot of you are thinking, and trust me – I’ve thought it, too, many times:  “Fibromyalgia?  Seriously?  That’s not even a real disease!”

And you’re right, it’s not.  It’s a group of symptoms that happen to occur together frequently enough for them to attach a name to it, because they don’t really know what else to do with it.  All you can basically do is try to get enough sleep, take anti-depressants, and get your ass up and moving to keep yourself from feeling too bogged down.  You stop moving, and it gets harder and harder to become active again, and eventually you end up sitting around all the time because you have no energy to do anything, and it hurts to try.

I don’t really have much else to say about it.  I know there are a lot of people who think it’s a crap diagnosis.  I know there’s a perception that people who claim fibromyalgia just want pain pills.  I also know that sleep could very well be all I need (as well as to get off my ass and exercise more and lose some damned weight).  I’m just going to have to see what happens at my appointment.

So if you could, please refrain from leaving derogatory comments.  I basically had to threaten myself with various dire consequences to get myself to the doctor…I’m already resisting this because of stigma.  I’d appreciate it if y’all would check yourselves.  You’re welcome to email me – I always accept emails.  I just don’t want this to turn into a flame war.

5 comments to More as this develops, but I thought I’d let y’all know.

  • Tracie

    Well, I’ve written several stories about fibromyalgia and it’s cousins. The people I’ve spoken with don’t seem to be just addicted to the pain pills. Some of them are active and busy, they just have this unexplainable annoying pain. It may not be recognized by many as true condition, but I think there is truth in there somewhere.

    I definitely won’t stigmatize you. Before all the reporting I did on fibromyalgia, I admit I was a bit skeptical. But like I said, some of these folks seem legit.

    I’ll be thinking of you as you go to this specialist. I hope Cloud brings you many comforting cuddles.

  • eek

    neurologists aren’t all they’re cracked up to be, either.

    good luck.

  • eek

    i mean rheumies.

    *gah*

    :P

  • Joe

    FWIW, my wife got the same diagnosis, and had the same doubts. Didn’t want to take a pill, but on a lark tried accupuncture. The pain is gone, and she hasn’t had to take her allergy medicine since. Very unexpected – but welcome – surprise. Email me if you want info.

  • Having suffered Chronic Fatigue Syndrome myself, I can sympathise. It sucks. And it’s freaking hard to look after yourself when you have no energy to do it. It took me about a year of rest, gentle exercise, etc etc before I started feeling ‘normal’ again, but even now, I still need more sleep/rest/downtime than the average person seems to. I consider myself in ‘remission’, but symptoms do tend to flare up when I’m burning the candle at both ends.

    Take care of you.