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So it turns out I have Lyme…?

I got my blood test results in the mail yesterday.

Rather than doing a quantitative (i.e. numbers with a “normal” range to compare them to) test, my doctor chose a qualitative (i.e. “reactive” or “non-reactive”) test.

Those tests are NOTORIOUS for being horrible at diagnosing Lyme, and the lab they sent the sample to is notorious for…well, sucking.

My 41 KD (IGM) Band was the only “REACTIVE” result I got.

It turns out, as my OCD/research-obsessed reading has told me, that’s the #1 indication of antibodies for Lyme.  From what I understand, it’s a measurement of the weight of some part of the antibodies your body’s making, and that weight is specific to ONLY Lyme antibodies.  There are two other weights which I assume would show up more easily in this particular lab if I had JUST been bitten, but for as long as I’ve been sick, I’m not surprised those didn’t show up.

I’ve never had a vaccination for Lyme disease, which means I’ve been infected at some point.

All of my symptoms are congruent with post-Lyme Syndrome…not just at that link, but every link and study I’ve read in the past 24 hours.

Here’s a PDF with a longer list…obviously, I don’t have ALL of those symptoms (thank god, and bless anyone who does, because holy shit, that would suck), but I have at least two symptoms in every single category…in some, I have all but perhaps one symptom.  For example, I’m not lactating.  That’d bring along another worry entirely…heh.

I’ve looked up a doctor who specializes in Lyme, and he’s only a little over an hour South of where I live.  I have an appointment on the 16th of this month to speak with him about this, and I’m filling out the handy-dandy symptom list so that things go a little more quickly.  I was told that he was thorough, and a fan of aggressive treatment.  I need some blunt honesty and less dawdling, so I’m looking forward to meeting with him and finding out what the hell is going on.

I’m still job-hunting, looking forward to living somewhere other than my dad’s house (for several reasons), and I have some emotional support down here.

But…yeah.  I’m scared right now, mainly because it’s a “maybe”, but it’s more of a certainty that could either be treated or be beyond treatment…if that makes sense.

So something smaller than the head of a pin is likely the cause of all of my woes.

WTF, life.  Seriously.

11 comments to So it turns out I have Lyme…?

  • Go look at this blog.
    She has Lyme, too and writes about it a little.

    Good luck and hopefully now you know what’s going on.

  • Ummmm………that would be

    instead of that brainfart I put on the first comment.

  • Pat

    A friendof my wifes was just diagnosed after suffering from varrying symptoms for 20 some years. She was infected as a teen. My best wishes and prayers are with you.

  • Hi good to hear you have found a good Lyme Literate Medical Doctor prepared to treat Lyme rather than the usual IDSA couple of weeks then a pat on the head and you are cured go live with your symptoms.

    Do as much research as you can about this illness so you are best able to understand not just the illness but the denial and politics that leaves thousands of patients World wide struggling with chronic ill health when for so many simple antibiotics can return us to a normal painfree life.

    If you look in the right hand column of my blog you will see many useful links into lyme related information.

    Best wishes to you.

    • I’m doing research, believe me…my brain won’t let me go without reading up on it.

      What I’m reading is disheartening, but I’m trying to keep my chin up.


  • Tracie

    I hope it’s a bit of relief at least to know you finally have a diagnosis.

    • It is, a bit. I just know what comes along with the diagnosis, so I’m not looking forward to that. But yes, it IS a starting point. I’m trying to see the value of it.

  • Sorry to hear it Bonnie, but at least you finally know what’s going on. No more Fibro BS.

    Best of luck!

    • It’s funny, I can’t decide whether to be happy about having a possible “real” diagnosis, or wanting to stick with the “fibro BS”…both are hell, one because of the unknown, and the other because all of the information out there basically says, “hey, you’re fucked because no one believes Lyme disease happens outside of the original area!”