June 4, 2013
I’ve decided that, no matter how horrible, awful, ridiculous, or even silly things get, I want to record as much as possible. I need to remember this. Other people need to read it. This is Lyme. MY Lyme, but Lyme, regardless.
This entry is long, because I’m going to talk about some medical details as well as just my day, so y’all understand things.
There seems to be a tie-in, or some sort of pattern, that occurs every two days. On the odd night, my stomach is okay. On the even night, it hurts so badly I can barely move. This is only the 4th day, and I feel like I’m getting an ulcer. The pain is a…singular sensation. Every little step he takes…
The evening of June 3, I took a nap, and then was up talking to a friend for a while on Skype (it cheered me up so much). I had a Five Guys single-patty cheeseburger, because after all of the vomiting, I felt I needed the protein and carbs more than I needed to stick to my gluten-free plan.
This morning, I was awakened by a horrible pain in my back. Just…a pain. I don’t even know what type to call it. It wasn’t soreness, or sharp…it just hurt. It was like muscle cramping, but…more awkward? I don’t know how to describe it.
I thought, well, I’ll take some ibuprofen and get to work and do what I can, stepped off of my bed, and my legs collapsed from under me. I ended up in Child’s Pose beside my bed, except with my arms oddly askew as I tried to hold my upper body in a somewhat rigid position so that I could assess whether or not I’d make it to the toilet, as I had to pee quite badly. Thankfully, Forrest happened to be walking by my bedroom, so I called to him for help, and he helped me to the bathroom (over the pile of clothing that I need to let my friends go through before donating it to the Salvation Army).
Did I mention, yet, that my pee is orange because fo the Flagyl? Because it is. It’s almost funny…I’m taking Vitamin B, as well, so my pee is like, Day-Glo.
Needless to say…second day in a row I didn’t make it to work. Awesome. Luckily, my boss has an immunological thing, so she understands. This is just ridiculous timing. I wish I’d known I was going to herx so quickly, because I would have started my medications a few weeks later. As it is, I look unreliable. That’s…well, it sucks. I know I can’t go in tomorrow, either, because with the way my stomach feels, tonight, I’m bound to be puking in 7 hours…just like I was on June 3rd. This is like a puzzle game…find the pattern! Woo!
For more than half the day, I had to use my cane more like a walker (both hands, straight in front of me, putting my weight on it), until Forrest picked up my prescriptions, which included lortab and valium. I used both. I looked forward to using both. I’ve never felt that feeling, before. It’s unsettling.
I know part of my stomach pain is because of my NSAIDs. I’m going to cut back on them. I started taking my ibuprofen TID because of joint pain, and that will get worse with the herx, but honestly, I’m more worried about my stomach, right now. As I mentioned in my last update, puking that much can’t be good for my teeth, and I’d like to do it as seldom as possible. Also, just…ow. Like right now? My stomach hurts more than anything else.
After I took my lortab and valium, with my mid-day dose of abx and whatnot, I was able to move around a little better, but felt someone should watch me just in case, since, well, I had quite a bit of continuing muscle issues and, with the combined medications, wanted to make sure that whole “muscles don’t work” thing didn’t happen again without someone around. So my friend Jason came over with his friend and bassist, and they rehearsed some music while I did my best to just not be…well, sick. I dunno how else to explain it.
As of now, it’s technically June 5, by 15 minutes, and I’m going to hopefully go to bed soon, and my stomach will help me out by not being a dick, and I’ll be able to get at least a few hours’ sleep, even if I don’t make it to work tomorrow because of the inevitable puke-fest that’s likely to happen.
I know that sounds pessimistic, but somehow anticipating it makes it better – I expect it, so it’s not as bad, even though I really hate throwing up.
I’ve always had an issue with my gag reflex while brushing my teeth (tongue, specifically), but the past few days, brushing my teeth/tongue has resulted in an automatic vomiting, so I have been trying to be careful and utilize mouthwash more so than a brush. It still makes me feel urpy, but it’s better…not for my oral health, necessarily (not brushing my tongue makes it feel furry because of complications from the systemic yeast infection in my digestive tract, so ick), but for not puking in the sink, which is just a pain in the ass.
I took a bath with Epsom salts and eucalyptus this afternoon, as I’ve read that helps draw toxins out of your skin (which is referred to by some as your “third kidney”), and I feel like it helped, but at the same time, I don’t know if I feel better because of the detox, or being clean. My skin had been burning horribly, though, and that stopped, so there might be something to it. I was simultaneously cold and burning up, and my skin felt prickly and strange.
I will say one thing, though…the lemon/lime water thing? Where you mix the juice of one lemon and one lime with 8 oz. of water and drink it through a straw (to save your teeth, of course)? CALLING BS. My stomach was hurting, but manageable, until I drank that shit. Holy CRAP that was terrible. My doctor recommended it, and it’s all over websites, but clearly I’m doing something wrong, or it’s just NOT the time for that treatment, because wow…again, OW STOMACH OW.
By the way, here are the most common symptoms of herx, according to the man himself, Herxheimer (the ones I’ve experienced since Sunday are in bold):
“The most common symptoms reported include increased fatigue, joint or muscle pain, skin rashes, photosensitivity, irritability, paresthesia [my note: fancy term for prickly feeling with numbness], dizziness, sleep disturbances, asthenia [my note: fancy word for muscle weakness], muscle cramps, night sweats, hypertension, hypotension, headaches (especially migraines) and swollen glands [my note: wasn't sure whether to include this one because my glands are pretty swollen, in my armpits and neck, all the time, but they're more tender]. Also reported are heavy perspiration, metallic taste in mouth, chills, nausea, bloating, constipation or diarrhea, low grade fever, heart palpitations, tachycardia, facial palsy, tinnitus, mental confusion, uncoordinated movement, pruritis [my note: fancy word for itching], bone pain, flu-like syndrome, conjunctivitis and throat swelling.”
Also? I can see the freakin’ capillaries in my hands. They’re red. They have a distinct pattern. I don’t know if that counts as a rash, but yeah. It’s creepy as all hell.
Anyway, today felt like a day where I should go over what, exactly, a herx entails, since mine’s just freakin’ taking over my life right now…I will talk about it pretty consistently, so you might as well know what the hell I’m saying.
OMG. During the course of the two hours I’ve been writing this entry, my stomach pain has gone away! YUSSSSS!
Also? I can take 22 pills in a single gulp, with just a bit of liquid. I’m not sure this is a great thing, but, well, at least I don’t have to laboriously take like, 3 at a time, 7 times. That would suck.
Aaaaaand 10 minutes later, my stomach hurts again. *facepalm*
With that, I’m done with this entry. Goodnight!