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FYI – people seem really confused by this?

An alarming number of people seem to think that my hysterectomy was the solution to all of my medical woes.  (Alarming = nearly 10 that I can count off the top of my head.)

Considering the hype that was placed on fundraising, I suppose I shouldn’t be surprised.

I will admit that not having cramps, bleeding, and dependence on painkillers just to function is a huge perk.

However, the surgery was just something I could fix RIGHT THEN, not the be-all and end-all of the problems I face.

My Lyme disease caused my uterus to break. My uterus wasn’t the keeper of my Lyme, and actually made up a relatively small percentage of my symptoms…it’s just that those symptoms were very dangerous and needed to be addressed quickly.

For example, the cramps were so overdone that my vagus nerve was getting damaged.  A damaged vagus nerve leads to things like gastroparesis, which means your stomach can’t digest food (remember the “funny” story of the man that made alcohol in his gut because he wasn’t digesting food quickly? that’s a severe case of gastroparesis.), and also affects your heart rate.

My left ureter, it turns out, was literally on the wrong side of my body.  My intestines weren’t functioning properly because they were attached to my uterus by what turned out to be a small ball of isolated endometrium and scar tissue.

This is completely aside from the large amount of blood loss I suffered each month, which, when you look up the symptoms of babesia (which, yes, it’s true I didn’t know I had it at the time, but it’s a dangerous combination), is horrifying.  Hemolytic anemia is a possibility, and with many women suffering from anemia from monthly blood loss, anyway, my risk was increased. It’s likely that if there weren’t problems with scarring and whatnot, anyway, I would have had either an ablation or a hysterectomy later in life due to these issues, anyway.

 

I’m not being snarky – these assumptions have been peppered over the past couple of months (with even family members expressing their hope that I will be “cured” after the surgery, after I’ve gone into an uber-TMI-fest with them about Lyme), and since I was already updating about other things, I figured this was as good a time as any to confirm for sure what I’ve said to people individually:  My surgery, as amazing as it was, was not the cure for anything but my horrible periods and pelvic pain.

I’m extremely grateful to everyone for their help with paying for the surgery.  I haven’t said it a lot because it’s still a little overwhelming.

I will continue to educate as I can – and this is just another instance where I suppose I needed to clarify after the fact.

<3

(I’m going to give my usual DON’T OUT YOURSELF speech, here, because people like to jump on perceived stupidity, so if you were one of the people who were confused about whether the surgery would cure me, I appreciate your concern, and if you want to email me, feel free, but don’t comment here unless you’re prepared to receive comments from folks who may not be particularly kind about it.  Also, if you think I mislead you, you are sorely mistaken, and I’ve  never said that my surgery would help anything except my bad periods and pelvic pain – there was also a fear of cancer, which was thankfully disproved.  So no angry comments, either.  I’m not calling anyone stupid, and I’m not encouraging any else to call folks stupid, either.)

I’ve done more typing today than I’ve done in the past month, I think.  Lordy.

6 comments to FYI – people seem really confused by this?